Platform · Research Priority Commons · not a forum
Questions patients want answered, and what each one would take.
A design for questions patients want answered, each ending in a disposition. Not built yet.
Platform · Research Priority Commons · not a forum
Questions patients want answered, and what each one would take.
Every question here ends in a disposition — answered, not yet answerable, or closed with a reason. No voting, no threads. Comments are refinements to the question, not replies. When a question cannot be answered, the card says which data element is missing.
Lifecycle
- submitted
- refining
- feasible / not yet answerable
- claimed
- answered / closed
No question disappears. A graveyard would be a kind of dishonesty.
Questions
No question has been submitted — there is no way to submit one yet. When there is, every card carries its state, its plain-language reading, and a disposition.
The gap card · what is missing
When a question is not yet answerable, its card names the data element the commons lacks, why it is short — fewer than five people hold it beside the entry it would pair with — and what would change that. The question stays open and re-checks.
Closed, with the reason left visible
What a question cannot become: a treatment comparison — did one thing work better than another. The commons reports what a cohort looked like, never what a treatment did; a figure like that would be read as evidence it cannot be. Such a question is closed with this reason and left where it is. That rule holds today, in the code that publishes a finding.
Submit a question
Every question would be checked against the codebook: which data elements would answer it, and whether the commons holds five or more people with each.
Depositing a result — including the ones that found nothing
A null result is an answer to the question that was asked, and this field’s problem is that nulls do not get written up. A deposit here is not a publication and does not pretend to be one — it is a dated record that somebody looked and what they found.
What a deposit must carry
- The question it answers
- as submitted, with its refinements
- The plan, timestamped before the pull
- or the receipt says “no preregistration” in the same size type as everything else
- A contributor line
- the roles people played and how many played them — never a name
- The withdrawal sentence
- records withdrawn before the pull are absent; records withdrawn after it stay, and the extract says so
- A re-run link
- the exact query — filters, codebook version, time axis, suppression floor — under the next researcher’s own credentials
- A plain-language summary
- written by the researcher who ran it, because the people whose records made it possible are the ones most likely to read it
Deposited so far
None. No deposit table exists.
Four rules that make a result readable
Publication bias is this field’s oldest problem. These four decide whether a finding deposited here can be trusted, argued with, or repeated by someone who does not know you.
- 1
The plan goes in before the data comes out
designedA preregistration slot sits in front of every extraction: the question, the cohort definition, the outcome and the analysis, timestamped. Not a gate — you can extract without one, and the receipt then says so in the same size type as everything else. What it removes is the ability to decide afterwards which comparison you were always going to run. Amendments are allowed and visible.
- 2
The people who contributed are credited
designedEvery deposit carries a contributor line naming the roles people played and the number who played them. Nobody is named, because nobody consented to be named. The line is required at deposit and travels into the citation. A commons built from other people’s labour that credits none of it is an extraction with better manners.
- 3
Withdrawal is answered at the moment of the pull
holds todayRecords withdrawn before an extraction are absent from it; records withdrawn after it stay in that extract and cannot be removed from an analysis already run. The rule holds today — turning research contribution off removes a record from the commons at its next refresh and from every match on the next page load, and a figure already released stays released. The sentence printed on the extraction itself is the designed half.
- 4
Anyone can re-run it
designedEvery deposited result would carry a link that rebuilds the exact query under the second researcher’s own credentials and ethics approval, with their own receipt dated their own day. The counts will not always match, and that is the point: two receipts together say by how much the commons grew, and why.